To supplement the online resources, courses and activities provided to cancer patients on this website, the Society for Immunotherapy of Cancer (SITC) also maintains a list of patient registries and surveys from partnering organizations.
A registry is a collection of information about individuals, usually focused around a specific diagnosis or condition. Participation in registries is voluntary. Registries can provide healthcare providers and researchers with valuable information to help increase understanding of a disease or condition (National Institutes of Health, 2018).